If you are a healthcare provider, researcher, patient or parent, there are many ways to stay connected with the Pediatric MDS and BMF Registry. We’ll be updating the site regularly to provide information about the progress of our research as well as MDS-related conferences and educational opportunities. Follow us on Twitter, join our Facebook group, watch videos and more!
Join our Pediatric MDS and BMF Registry page on Facebook. It’s a great way to keep up-to-date about the registry and get in touch with other healthcare providers, researchers, patients and families.
For instant updates about the registry and news about our progress, follow us on Twitter. You will get regular updates about our registry on your Twitter feed.
Click here to view video content related to the Pediatric MDS and BMF Registry. Check back here for interviews with MDS and BMF experts at Children’s Hospital and other study centers as well as updates on our research activities, educational videos and more! Videos can be viewed without signing up for an account.
Click here to grab our RSS Feed. Receive news and updates about the Pediatric MDS and BMF Registry delivered instantly to your inbox. This is especially recommended for healthcare providers and researchers that want to keep abreast of new research and treatments developed through our registry.
If you have questions about MDS or BMF, our site or our registry, please feel free to contact us via email. We will respond as soon as possible. For urgent matters, please call Jennifer Braunstein at 888-5-PediMDS.