About MDS Registry
We are joining forces with several large centers around the country to form the Pediatric MDS and BMF Registry. The coordinating study center for the registry is Children’s Hospital Boston. Below is a list of medical centers currently participating and their contact information.


Children's Hospital BostonChildren's Hospital Boston
300 Longwood Avenue
Boston, MA 02115 USA
Contact : Inga Hofmann, MD, PhD
Phone: 617-632-2463
Fax: 617-632-4410
The Children's Hospital of PhiladelphiaThe Children's Hospital of Philadelphia
34th Street and Civic Center
Boulevard,
Philadelphia, PA 19104-4399
Contact : Richard Aplenc, MD, MSCE
Phone: 215-590-1000
Email: raplenc@mail.med.upenn.edu
St. Jude Children's Research HospitalSt. Jude Children's Research Hospital
262 Danny Thomas Place
Memphis, TN 38105
Contact : Raul Ribeiro, MD
Phone: 901-595-3694
Email: raul.ribeiro@stjude.org
Texas Children's HospitalTexas Children's Hospital
6621 Fannin Street
Houston, Texas 77030
Contact : Alison Bertuch, MD, PhD
Phone: 832-824-4579
Email: aabertuc@txccc.org
Children's at EglestonChildren’s Healthcare of Atlanta
1405 Clifton Road NE
Atlanta, GA 30322-1060
Contact : William Woods, MD
Phone: 404-785-1200
Email : william.woods@choa.org
Contact : Todd Cooper, DO
Phone: 404-785-1838
Email: Todd.cooper@choa.org
The Hospital for Sick ChildrenThe Hospital for Sick Children
555 University Avenue
Toronto, Ontario
Canada,
M5G 1X8
Contact : Yigal Dror, MD, FRCP(C)
Phone: 416-813-5630
Email: yigal.dror@sickkids.ca
Children's at EglestonRocky Mountain Hospital for Children at Presbyterian/St. Luke's Medical Center
1719 East 19th Avenue
Denver, Colorado 80218
Contact : Jennifer Clark, MD
Phone: 303-832-2344
Email : jennifer.clark@healthonecares.com
The Hospital for Sick ChildrenLucile Packard Children's Hospital
725 Welch Road
Palo Alto, CA 94304
Contact : Gary Dahl, MD
Phone: 650-497-8953
Email: gary.dahl@stanford.edu
Children's at EglestonDoernbecher Children's Hospital
3440 S.W. U.S.
Veterans Hospital Road,
Portland, OR 97239
Contact : Linda Stork, MD
Phone: 503-418-5150
Email : storkl@ohsu.edu
The Hospital for Sick ChildrenMemorial Sloan-Kettering Cancer Center
1275 York Avenue
New York, NY 10065
Contact : Peter Steinherz, MD
Phone: 212-639-7951
Email: steinhep@mskcc.org
Children's at EglestonChildren's Memorial Hospital
2300 Children's Plaza
Chicago, Illinois 60614-3363
Contact : Seth Corey, MD, MPH
Phone: 773-880-4562
Email : s-corey@northwestern.edu
The Hospital for Sick ChildrenChildrens Hospital Los Angeles
4650 Sunset Boulevard
Los Angeles, CA 90027
Contact : Paul Gaynon, MD
Phone: 323-361-5600
Email: pgaynon@chla.usc.edu
Children's at EglestonUT Southwestern Medical Center
Main Entrance
5323 Harry Hines Blvd.
Dallas, Texas 75390
Contact : Zora Rogers, MD
Phone: 214-648-3896
Email : zora.rogers@utsouthwestern.edu
The Hospital for Sick ChildrenSchneider Children's Hospital
269-01 76th Avenue
New Hyde Park, NY 11040
Contact : Jeffrey Lipton, MD, PhD
Phone: 718-470-3460
Email: jlipton@lij.edu
If your hospital and/or medical center is interested in joining Pediatric MDS and BMF disorders patient registry and tissue repository, please contact our principal investigator Dr. Inga Hofmann at Children’s Hospital Boston by emailing mds@childrens.harvard.edu